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Research

Recent Conference Abstracts

Use of an Interactive Computer Program for Advance Care Planning with African American Participants
For various cultural and historical reasons, African Americans are less likely than Caucasians to engage in advance care planning (ACP) for healthcare decisions... read more

Patients with Congestive Heart Failure Find Decision Aid for Advance Care Planning Helpful and Computer-Generated Advance Directive Accurate
The fluctuating clinical course of congestive heart failure involves recurrent medical crises and readmission rates of... read more

Medical Students' Experiences Using an Online Decision Aid to Engage in Advance Care Planning
Most physicians report that their medical training inadequately prepared them to help patients engage in advance care planning (ACP). This study examined... read more

Advance Care Planning Decision Aid Improves Clinician Understanding of Wishes of Patients with Amyotrophic Lateral Sclerosis
This study examined whether a computer-based decision aid for advance care planning (ACP) could help improve communication... read more

Published Articles

Accuracy of a Decision Aid for Advance Care Planning: Simulated End-of-Life Decision Making
Advance directives have been criticized for failing to help physicians make decisions consistent with patients' wishes. This pilot study sought to determine if an interactive... read more

Advance care planning for patients with ALS: Feasibility of an interactive computer program
This pilot study examined whether an interactive, computer based decision aid can help patients with amyotrophic lateral... read more

Development of an interactive computer program for advance care planning
Advance care planning is an important way for people to articulate their wishes for medical care when they are not able to... read more

Doing What We Can With Advance Care Planning
Except for the claims by Dawson and Wrigley (2010),we are largely in agreement with the views expressed in the commentaries to our article describing... read more

Reliability of an Interactive Computer Program for Advance Care Planning
Despite widespread efforts to promote advance directives (ADs), completion rates remain... read more

Teaching Advance Care Planning to Medical Students with a Computer-Based Decision Aid
Abstract Discussing end-of-life decisions with cancer patients is a crucial skill for physicians. This article reports findings from a pilot study evaluating the effectiveness of... read more

Too Soon to Give Up: Re-examining the Value of Advance Directives
When Nina Klinger, 78, went to see her doctor, she learned that she was in the early stages of... read more

What Influences Individuals to Engage in Advance Care Planning?
Advance care planning (ACP) is a complex process that requires individuals to (1) think about what kind of lifeprolonging medical care (if any) they wish to receive... read more

Student Projects

Student Projects Involving MYWK

All medical students at the Penn State College of Medicine are required to complete a research project prior to graduation. Those listed below have worked with our research team on various aspects of Making Your Wishes Known: Planning Your Medical Future (MYWK).

These students have received significant guidance and support (including education on advance care planning) from our research team, and the co-Principals of this team (Dr. Benjamin H. Levi MD PhD, and Dr. Michael J. Green MD MS) are ultimately responsible for students' actions and conduct.

In research projects involving clinical trials, students recruited study participants, elicited informed consent, collected pre-/post-intervention data, and facilitated use of the intervention. For all projects, students submitted a formal written report of their research, and in some cases, have published their findings.

Jessica Hensel
Helped conduct a feasibility study to examine the acceptability of MYWK among patients with congestive heart failure (CHF). This clinical trial involved 24 patients. (abstract)

Steven Heverly
Helped conduct a pilot study to examine how well the advance directed generated by MYWK can help physicians accurately translate patients' wishes into treatment decisions that patients approve. This clinical trial involved 18 patients. (abstract, published paper)

Joshua Hozella
Helped conduct a feasibility study to examine the acceptability of MYWK among patients with advanced lung disease. This clinical trial involved 20 patients. (abstract)

Sarah Markham
Helped conduct a feasibility study to examine the acceptability of MYWK among African-Americans. This clinical trial involved 18 patients. abstract

Kimberly Rush
Helped conduct a study examining whether the advance directive document generated by MYWK reliably reflects an individual's values/preferences. This clinical trial involved 35 patients. (abstract)

Carrie Hossler Smith
Helped conduct a feasibility study to examine the acceptability of MYWK among patients with amyotrophic lateral sclerosis (ALS). This clinical trial involved 18 patients. abstract, published paper)

Lisa Toran
Helped examine medical records and research data to assess the concordance between patients' understanding of their cancer diagnosis and the diagnosis assigned by physicians. (abstract)

 

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